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MDA
United States
Приєднався 14 лют 2007
About Muscular Dystrophy Association
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
To learn more visit mda.org and follow us on social media @MDAorg
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
To learn more visit mda.org and follow us on social media @MDAorg
MDA Virtual Learning FSHD Updates in Research
This MDA webinar held on June 4, 2024 shares updates on the status of current research in FSHD, current care and treatment approaches for FSHD as well as information and resources to help FSHD patients make informed decisions about their care. The featured presenter of this webinar is The featured presenter of this webinar is Rabi Tawil, MD; Professor of Neurology Pathology and Laboratory Medicine at University of Rochester Medical Center. Special thank you to our sponsors, Avidity Biosciences and Fulcrum Therapeutics.
Переглядів: 74
Відео
MDA x Magic Wheelchair: Katherine’s Scooby Doo and the Mystery Machine Reveal
Переглядів 3812 годин тому
#MDA #MagicWheelchair #ScoobyDoo #MuscularDystrophy #SpinalMuscularAtrophy #SMA #Neuromuscular
MDA Advocacy Institute: FAA Reauthorization Passes
Переглядів 2619 годин тому
Join MDA’s Shannon Wood, Mindy Henderson, and Mark Fisher as they talk though all the air travel reforms that will improve the flight experience for people living with disabilities that passed during the FAA Reauthorization.
Accredo's Patient Centric Approach to Rare Conditions
Переглядів 2619 годин тому
The objective of this webinar is to outline the range of specialized pharmacy services available to Rare diseases health care providers, emphasizing how these services can support and enhance their patient care efforts, to meet the unique needs of patients with rare neuromuscular conditions.
Becker Muscular Dystrophy A Novel Approach Designed to Protect Muscle
Переглядів 5421 годину тому
Join Edgewise's Chief Scientific Officer and Chief Medical Officer to learn more about the company’s novel approach designed to protect muscle in individuals living with Becker muscular dystrophy. The webinar will highlight EDG-5506 (Sevasemten) an investigational compound, in the form of a daily oral pill, that could be used alone or in combination with other therapies, regardless of mutation....
Patient and Caregiver Perspectives on a New Treatment Option for DMD
Переглядів 11721 годину тому
Join Dr. Migvis Monduy as she chats with a teenager living with Duchenne muscular dystrophy (DMD) and his parent. They will discuss daily life with DMD, a new corticosteroid with a novel structure, and how different treatment options impact their shared decision making.
Updates in Research and Treatment Options for Pompe Disease
Переглядів 68День тому
This MDA webinar, held on May 21st, 2024, focuses on an overview of current treatment options and updates regarding the status of research and clinical trials in Pompe disease. The presentation provides knowledge and strategies to help patients discuss treatment considerations with their doctor. The featured presenter of this webinar is Urvi Gautam Desai, MBBS, MS, MD, FAAN from Atrium Health N...
Dutch Bros and MDA partner to End ALS: Drink One for Dane & Brooke!
Переглядів 21День тому
#DutchBros and #MDA partner to #EndALS: #DrinkOneForDane #DrinkOneForBrooke #EndALSwithMDA #ALS
Happy Mother’s Day from MDA with Brooke Eby
Переглядів 20День тому
1. #HappyMothersDay from #MDA with #BrookeEby #EndALSwithMDA #EndALS #ALS
MDA Advocacy - Accessible Air Travel - Paul Melmeyer, EVP, Public Policy & Advocacy
Переглядів 12День тому
MDA Advocacy - Accessible Air Travel - Paul Melmeyer, EVP, Public Policy & Advocacy
End ALS With MDA - Lou Gehrig Day with MLB Brewers’ Rhys Hoskins
Переглядів 5014 днів тому
#EndALSwithMDA #LouGehrigDay #MLB MLB #Brewers #RhysHoskins
A Novel Approach Designed to Protect Muscle in Becker Muscular Dystrophy
Переглядів 15521 день тому
Join Edgewise's Chief Scientific Officer and Chief Medical Officer to learn more about the company’s novel approach designed to protect muscle in individuals living with Becker muscular dystrophy. The webinar will highlight EDG-5506 (Sevasemten) an investigational compound, in the form of a daily oral pill, that could be used alone or in combination with other therapies, regardless of mutation....
MDA Advocacy Institute: ALS Policy Updates
Переглядів 4721 день тому
Dr. Amelie Gubitz of the National Institutes of Health (NIH)'s National Institute of Neurological Disorders and Stroke (NINDS) covered the NIH's role in ACT for ALS implementation. MDA’s EVP, Public Policy and Advocacy, Paul Melmeyer, and Director, Access Policy, Joel Cartner provided the latest insights and news on the ALS policy landscape, including FDA's role in implementing ACT for ALS and ...
MDA Virtual Learning: ALS Series Day 1
Переглядів 10221 день тому
This MDA webinar, held on May 8th, 2024, includes three presentations from Day 1 of our ALS Virtual Learning Series. Dr. Lyle Ostrow, MD, PhD., shares updates on the state of research and care for ALS (Starting at 4 min 54 sec). Paul Melmeyer, MDA’s Vice President of Public Policy and Advocacy, shares information related to the ACT for ALS and ways for you to get involved in MDA’s ALS advocacy ...
MDA Virtual Learning: ALS Series Day 2
Переглядів 4221 день тому
This MDA webinar, held on May 9th, 2024, includes two presentations from Day 2 of our ALS Virtual Learning Series. Deborah Taylor, PT, and Angela Escalante, OT, share exercises for managing symptoms and maintaining range of motion and strength for individuals with ALS (Starting at 4 minutes, 19 sec.). Then, Kristen Larsen, MA, CCC-SLP, presents on Speech, Communication, and Eating consideration...
2024 #MDA #SummerCamp #Volunteer #CampCounselor Nicholas 1
Переглядів 3528 днів тому
2024 #MDA #SummerCamp #Volunteer #CampCounselor Nicholas 1
2024 #MDA #SummerCamp #Volunteer #CampCounselor Johanna
Переглядів 4328 днів тому
2024 #MDA #SummerCamp #Volunteer #CampCounselor Johanna
2024 #MDA #SummerCamp #Volunteer #CampCounselor Nicholas 2
Переглядів 2028 днів тому
2024 #MDA #SummerCamp #Volunteer #CampCounselor Nicholas 2
2024 #MDA #SummerCamp #Volunteer #CampCounselor
Переглядів 4228 днів тому
2024 #MDA #SummerCamp #Volunteer #CampCounselor
2024 #MDA #SummerCamp #Volunteer #CampCounselor Zach
Переглядів 2328 днів тому
2024 #MDA #SummerCamp #Volunteer #CampCounselor Zach
2024 MDA Summer Camp Counselor Volunteer, Micaela
Переглядів 25Місяць тому
2024 MDA Summer Camp Counselor Volunteer, Micaela
MDA Virtual Learning: Parenting Challenging Behaviors in Children with Neuromuscular Disease
Переглядів 95Місяць тому
MDA Virtual Learning: Parenting Challenging Behaviors in Children with Neuromuscular Disease
Updates in Limb Girdle Muscular Dystrophy
Переглядів 413Місяць тому
Updates in Limb Girdle Muscular Dystrophy
MDA Advocacy Institute The Power of Your Vote
Переглядів 38Місяць тому
MDA Advocacy Institute The Power of Your Vote
MDA Virtual Learning: Navigating Adolescence with a Neuromuscular Disease
Переглядів 109Місяць тому
MDA Virtual Learning: Navigating Adolescence with a Neuromuscular Disease
End ALS with MDA, Brooke Eby - MDA Wings Over Wall Street June 6
Переглядів 59Місяць тому
End ALS with MDA, Brooke Eby - MDA Wings Over Wall Street June 6
End ALS with MDA - Care Centers Brooke Eby
Переглядів 196Місяць тому
End ALS with MDA - Care Centers Brooke Eby
End ALS with MDA, Dr. Matthew B Harms, MDA Medical Advisor, Dutch Bros
Переглядів 44Місяць тому
End ALS with MDA, Dr. Matthew B Harms, MDA Medical Advisor, Dutch Bros
End ALS with MDA, Matthew B Harms, MD, MDA Medical Advisor
Переглядів 59Місяць тому
End ALS with MDA, Matthew B Harms, MD, MDA Medical Advisor
Thanks for uploading. Like cover tunes? If you have a second, I just posted an acoustic cover of Miley Cyrus. As a fellow music lover, I'd love if you would check it out. It's on my channel. Hope you like it!
Thank you for all your hard work.
Thanks for sharing. I've uploaded some new original house beats on my channel. Would love to hear your thoughts 🙏🏼
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All of you really fought that dragon as if you summoned the spirit of Star Platinum from JoJo's Bizarre Adventure
❤️❤️❤️
Keep the content coming buddy 🙏